Falling of the Plateau

Last week, I had the pleasure of taking my vehicle to the dealership, if you can call it that. The pleasure, I mean. The engine light was on. I couldn't fix it with oil, antifreeze, or transmission fluid. They plug your vehicle into the computer to find out what's wrong. That is an immediate charge of $89. Why? They don't have to spent 2 hours looking for the problem. Then they don't have the part, but they can get it. Also, along with the fee for the sensor, there is a list of things my vehicle needs that will total $2,000. I decide to just do the air sensor. It won't take too long, so I decide not to have them shuttle me home.

Alas, the trip starts going downhill fast. They are inflating gigantic balloons near the waiting room. I try to wait outside, as I have done before, but the temperature is 32o. It won't hit 50o for a couple of hours. I spend my time in the service area next to the pile of tires, no chair to sit on, but I can lean against the wall a lot while I read. also, for my enjoyment, it's all windowed so I get "free" entertainment watching all the mechanics working in their bays. I can't figure out whose working on my van, but the guy in the next bay is snapping his latex gloves on & off . My hood is open. The airborn rubber protiens have become hitchhikers on my engine. I end up spending 4 hours there because the part was only available at the furthest dealership.

The hives are popping up in my mouth, and my driving is poorly focused as i drive home. I'm having a reaction. Of course. I can't stay much longer than 15 minutes in any public place. i'm usually homebound for 2 days with a reaction and stoned on benadryl, even tho' I know it can take 3 days to recover. Well the 3rd day, I was still in the reaction. The 4th day I had to cancel an important fun day for me. (Latex Allergy allows me about 3 of those a year and not necessarily the ones most important to me.) The 6th day I get some groceries. I'm still reactive or I'm rebounding. After 7 days stoned on benadryl, not getting out of the reaction, I am frustrated with my whole life and what I can't do. On the 8th day I hold the benadryl and get into the doctor's office for a script for prednisone.

I haven't mentioned all the anger, frustration, feeling like crap, and the revelations about what I can no longer do that have gone through my mind this past week. I do know in my heart that this disease is progressive. There is no textbook about NRLA, just those of us who have it.

Sal

Natural Rubber Latex Allergy & Coping

Some days I just feel so alone. I live alone, except for Casey, my pride & joy & the greatest company.

I can't even remember the places I went to on Thurs., Fri., & Sat. in this Benadryl blur. I did go to a garage sale. The others were drive bys. I know I have been in Wal*Mart a couple of times. I had been in Lowe's earlier last week. The exposures to natural rubber latex mount up in my exposure glass to overflowing.

I do remember finally reacting on Fri. afternoon after spraying my shrub clippers with WD-40. It contains carba, thiuram, & mercapto mix, all chemicals used as accellerators in the manufacture of latex gloves. Initially, I was only allergic to these chemicals & had only topical or skin reactions. Now I'm getting into severe systemic reactions from these chemicals. Actually I have before. They are also found in disinfectants & insecticides.

I had to cancel company coming on Sat. & again on Sun. while still feeling the effects of the reaction & the Benadryl load in my system. Sun. I held my Benadryl til I could go to the drug store to pick up my allergy meds.

Mon. I picked up the rest of my allergy meds, mainly rescue meds., including epi-pens. Stopped at Wal*Mart to pick up a couple of things & chatted too long. My problem tire needed air. The rubber from the compressor tubing & my tire got me. It was down 15 lbs. of pressure & very noticeable. It's time to replace the tire!!!

So I'm here, homebound for a couple more days. I do need to pick up other meds tomorrow, but will do this at the drive up. Not going anywhere else tomorrow & praying that I won't need to keep the benadryl going tomorrow.

I fight the effects of the Benadryl, still trying to feel functional, but doing mindless tasks that do accomplish something. The feeling of worthlessness keeps popping up no matter how hard I try to stay positive. I only share my thoughts & feelings with people in my support group online. They are the only ones who totally understand this terrible allergy. My close friends are learning more & more, especially when I use the rubber word rather than latex. It seems to help them understand much quicker what has gotten me into trouble again.

This isn't the life I chose, nor did I ask for it. It is a challenge, sometimes a draining challenge, but in many ways I've become a better person for it.

If you are reading this post, you are very welcome to contact me or go to www.LAForum@ yahoo groups.com to learn more.

Sal

Balloons!!!!

I held off for 2 weeks to take my vehicle to the dealership for my free oil change and inspection because of all the latex balloons tied to the new and used cars for sale in the lot. I gave myself a good pat on the back for watching out for that.

I drove into the dealership yesterday and all the balloons were on the pavement with most of them totally deflated. I just patted myself on the back again. I was doing a great job keeping myself safe from all those latex proteins. After all these years, I can stay on top of exposures.

I checked in with a new person working in the service department. He had no idea about latex allergy, but my account stated no latex gloves. I told him I was waiting for my vehicle.

While walking past the parts department & cashier with the half wall exposing the mechanics bays, I noticed new rubber floor runners. I almost made it to the waiting room when I saw all the latex balloons waiting to be tied to the vehicles for sale. They had been blown up, were up at the ceiling, and had their ribbons, or whatever, hanging from them to attch them to the vehicles.

Oops, time to go outside for an hour or so waiting for my vehicle and pray that I wouldn't have a reaction. I did try to accomplish a couple of errands after that. My mistake, I'm now homebound on benadryl again.

Life is truely a challenging experience with natural rubber latex allergy.

Sal