Last week, I had the pleasure of taking my vehicle to the dealership, if you can call it that. The pleasure, I mean. The engine light was on. I couldn't fix it with oil, antifreeze, or transmission fluid. They plug your vehicle into the computer to find out what's wrong. That is an immediate charge of $89. Why? They don't have to spent 2 hours looking for the problem. Then they don't have the part, but they can get it. Also, along with the fee for the sensor, there is a list of things my vehicle needs that will total $2,000. I decide to just do the air sensor. It won't take too long, so I decide not to have them shuttle me home.
Alas, the trip starts going downhill fast. They are inflating gigantic balloons near the waiting room. I try to wait outside, as I have done before, but the temperature is 32o. It won't hit 50o for a couple of hours. I spend my time in the service area next to the pile of tires, no chair to sit on, but I can lean against the wall a lot while I read. also, for my enjoyment, it's all windowed so I get "free" entertainment watching all the mechanics working in their bays. I can't figure out whose working on my van, but the guy in the next bay is snapping his latex gloves on & off . My hood is open. The airborn rubber protiens have become hitchhikers on my engine. I end up spending 4 hours there because the part was only available at the furthest dealership.
The hives are popping up in my mouth, and my driving is poorly focused as i drive home. I'm having a reaction. Of course. I can't stay much longer than 15 minutes in any public place. i'm usually homebound for 2 days with a reaction and stoned on benadryl, even tho' I know it can take 3 days to recover. Well the 3rd day, I was still in the reaction. The 4th day I had to cancel an important fun day for me. (Latex Allergy allows me about 3 of those a year and not necessarily the ones most important to me.) The 6th day I get some groceries. I'm still reactive or I'm rebounding. After 7 days stoned on benadryl, not getting out of the reaction, I am frustrated with my whole life and what I can't do. On the 8th day I hold the benadryl and get into the doctor's office for a script for prednisone.
I haven't mentioned all the anger, frustration, feeling like crap, and the revelations about what I can no longer do that have gone through my mind this past week. I do know in my heart that this disease is progressive. There is no textbook about NRLA, just those of us who have it.
Sal
Wednesday, March 24, 2010
Falling of the Plateau
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